13/06/2014 – ACDP acknowledges International Albinism Day

ACDP Parliament
Media Statement
Cheryllyn Dudley, MP and Whip

ACDP acknowledges International Albinism Day

ACDP Member of Parliament, Cheryllyn Dudley, said today:

“Today, 13th June, is Albinism Day. Albinism is a rare genetic condition that occurs worldwide regardless of ethnicity – sadly people with albinism still face prejudice and isolation in society.

The United Nations has declared the condition to be a disability and today is a day to remind us to embrace people who struggle with the effects of the condition and welcome them in our society as the intelligent, creative and productive individuals they are.

Experts say the Department of Health does not have enough health care providers specialising in albinism, which means people with the condition do not always get the correct medical care.  There is a need for departments in general to interact with the Albinism Society and the ACDP calls on the departments of Justice, Health, Education and Labour to engage the Albinism Society to ensure relevant policies are in place.

The ACDP supports calls for partnerships with professionals in the medical field to assist in health promotion and medical care of people with albinism. Most are dependent on social grants and need help in reducing medical and health costs and expenses incurred because of special needs and living conditions.

The ACDP is aware that the new Minister of Social Development, Henrietta Bogopane-Zulu, has shown a special interest in this sector of society and we are confident that she will champion this cause and ensure programmes relevant to people with albinism are in place within this financial year.

There are about 10 000 affected individuals in South Africa – about 1 in 4000 people among our black population and 1 in 15 000 people are affected in our  white population. People with the albino condition have been the object of erroneous and dangerous beliefs that have fostered extensive discrimination and stigma, including deadly attacks against those with the condition, especially children and women.

Albinism Day is characterised by an online event to be broadcast live on YouTube and Google+. The link will be posted on the Albinism Society Facebook page on Friday 13 June at 16:30 CET. (South Africa is one hour ahead.)

Find out more: http://sm.ohchr.org/1nnFHYO

, , ,

No comments yet.

Leave a Reply